We feel that a great number of the fears, misconceptions and projections parents have about their children’s condition are based on things unknown or unfamiliar. You might not know what certain symptoms indicate, or the full implications of a doctor’s advice, or whether a flare-up might be serious or just a temporary situation.
The Share Your Story section of our site is a chance for you to write—at whatever level of detail is comfortable—about the circumstances of your child’s illness, your efforts to understand and cope with it, and the course of treatment you are pursuing.
We think this can offer invaluable comfort and advice to parents whose children are in similar circumstances. In the journey to heal a little heart, it’s never good to think that you are alone, without allies there to help you on the path.
These stories can be your allies. Also, writing the story of your child’s circumstances can even clarify your thinking about your approach to the healing journey, and how to assess progress. Knowledge itself is progress. Remember, you are not alone. Please share your story.
If you would like to submit your story please fill out the form and submit to Sophies Heart